Posts tagged rare diseases
Representation in Fashion

I’ve had to be more selective as to what I wear; with that I have been mindful of the brands and stores I shop from. One brand/store that I have absolutely loved has been American Eagle/Aerie. They have always had comfortable and adaptable clothes, and continue to provide more and more options for all body types and those with disabilities.

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My Mission

That has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.

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Happy Rare Disease Day!

Celebrate those in your lives who are affected with a rare disease! Educate yourself on the disease that affects your friend, family, or loved one. Advocate in your town, city, or state to encourage more opportunities for funding with local hospitals to research.

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