That has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.
Read MoreCelebrate those in your lives who are affected with a rare disease! Educate yourself on the disease that affects your friend, family, or loved one. Advocate in your town, city, or state to encourage more opportunities for funding with local hospitals to research.
Read MoreMy promise to you, my readers, is that I will be as open as I can be about the good, the ugly, and all the stuff in between. In the meantime, enjoy the ramblings of a young woman wanting to bring a little sunshine after a rainy day.
Read More