Posts tagged advice
My Mission

That has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.

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Happy Rare Disease Day!

Celebrate those in your lives who are affected with a rare disease! Educate yourself on the disease that affects your friend, family, or loved one. Advocate in your town, city, or state to encourage more opportunities for funding with local hospitals to research.

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Open Letter To My Sister

I know you don’t always see yourself as a perfect person, but I do. You have taught me I am more perfect through my imperfections than not. You have taught me that through hard work and perseverance I can achieve anything I desire. You have taught me how to let my imagination run free and create what I feel.

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