My Mission

Hello readers,

Some of you may be friends others family, and some may even be strangers. Consider this a re-introduction to me and my mission for this website.

My name is Sarah Mumper and I am diagnosed with McCune Albright syndrome. Some of you may not know what that is but I’m here to let you know. MAS is a rare genetic disease that affects my skin, my bones (fibrous dysplasia), and my endocrine system. Because of this rare disease, I have a physical disability and utilize a wheelchair, crutches, and a walker.

I grew up being very blessed with a support system and resources that have bettered my life and the outcome of my disease. I’ve had many incredible experiences that have given me insight that I feel helps others going through the same if not similar journey. For the past several years, I’ve had parents and other individuals who are also diagnosed with MAS/FD reach out to me through my social media wanting to know that they’re not alone and that there is hope.

That has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.

Thank you again to those who continue to follow and give your support and love through everything I do!

Love you more,

Sarah Elizabeth