Hello, I’m Sarah.
Disability Speaker | Consultant | Advocate
Helping organizations build more accessible, inclusive, and patient-centered communities through the power of lived experience.
Speaking
Topics:
Disability Inclusion
Accessibility Beyond Compliance
Living With Rare Disease
Patient Advocacy
Resilience
How to be an Ally
What I Do…
Consulting
Helping organizations:
Improve accessibility
Engage Disability Communities
Employee Resource Groups (ERGs)
Leadership Disability Literacy Training
Healthcare Partnerships
Advocating
Helping people living with rare disease feel seen through education, storytelling, and community.
Member of the Patient Advisory Council with the FD/MAS Alliance
Founder of RareMillion a community and resource page for people living with rare diseases.
Meet Sarah
I'm an advocate, artist, traveler, admin professional, and someone who has spent three decades navigating life with a rare disease.
I believe accessibility is more than ramps or compliance checklists. It's about creating spaces where people genuinely belong.
Whether I'm speaking at a conference, partnering with healthcare organizations, or helping someone newly diagnosed feel less alone, my goal is always the same:
Leave people feeling more informed, more connected, and more hopeful than before.
Why I do this…
Living with McCune-Albright Syndrome and Fibrous Dysplasia has shaped how I experience the world but it doesn't define me.
It has given me a unique perspective on healthcare, accessibility, inclusion, and resilience. Today I partner with organizations to make systems work better for disabled people not just through policy, but through real human connection with storytelling.
Get in Touch!
Schedule a free 1:1 initial consult to get to know me and so I can understand your needs.