That has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.
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What I would give for one more phone call or video chat with you to hear your voice or laugh, to hear one more story about a memory that I was too young to remember, to play and learn card games from you, or sit down with you and have candid conversations about life.
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I know you don’t always see yourself as a perfect person, but I do. You have taught me I am more perfect through my imperfections than not. You have taught me that through hard work and perseverance I can achieve anything I desire. You have taught me how to let my imagination run free and create what I feel.
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