It wasn’t an easy thing for me to accept my circumstances. I remember how many times I wish I had a new body, and how things could be so much different. The internalized ableism I experienced took a lot of time to unlearn, and I’m still working on it through therapy. I will still push myself to be independent to a fault just so I don’t inconvenience someone else; to the point that I over exert myself resulting in hurting myself emotionally or physically.
Read MoreBringing awareness about folks who are proud about their disability and who would like to be recognized as a person is the first small step to much needed change. More often than not the disabled community gets overlooked for the social justice conversations. Our voices tend to be overshadowed by others speaking for us rather than reaching out to understand our experiences.
Read MoreI’ve had to be more selective as to what I wear; with that I have been mindful of the brands and stores I shop from. One brand/store that I have absolutely loved has been American Eagle/Aerie. They have always had comfortable and adaptable clothes, and continue to provide more and more options for all body types and those with disabilities.
Read MoreThat has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.
Read MoreCelebrate those in your lives who are affected with a rare disease! Educate yourself on the disease that affects your friend, family, or loved one. Advocate in your town, city, or state to encourage more opportunities for funding with local hospitals to research.
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