Posts tagged Lifestyle
Representation in Fashion

I’ve had to be more selective as to what I wear; with that I have been mindful of the brands and stores I shop from. One brand/store that I have absolutely loved has been American Eagle/Aerie. They have always had comfortable and adaptable clothes, and continue to provide more and more options for all body types and those with disabilities.

Read More
My Mission

That has led me to want to create a platform that is easily accessible for them to reach out to me, and for others who are experiencing difficulties navigating a chronic or rare disease. This platform is also an opportunity to end the stigma that surrounds disabilities. Please know that I can only speak from my own experiences and more specifically to physical disability challenges. I do continue to educate myself on other disabilities as well as creating a safe space for those who don’t have support through their journey.

Read More
Happy Rare Disease Day!

Celebrate those in your lives who are affected with a rare disease! Educate yourself on the disease that affects your friend, family, or loved one. Advocate in your town, city, or state to encourage more opportunities for funding with local hospitals to research.

Read More
Open Letter To My Beautiful Grandmother

What I would give for one more phone call or video chat with you to hear your voice or laugh, to hear one more story about a memory that I was too young to remember, to play and learn card games from you, or sit down with you and have candid conversations about life.

Read More
Open Letter To My Sister

I know you don’t always see yourself as a perfect person, but I do. You have taught me I am more perfect through my imperfections than not. You have taught me that through hard work and perseverance I can achieve anything I desire. You have taught me how to let my imagination run free and create what I feel.

Read More